12-year-old Nevaeh started coming to SickKids soon after birth. Her feet were clubbed and she had breathing difficulties, with other physical issues.
At 4 years old she was diagnosed with Loeyz-Dietz syndrome, a rare connective tissue disorder. No two patients diagnosed with LDS will have identical medical characteristics, and Nevaeh is followed in Orthopaedics, Cardiology, Respirology, Dentistry, Gastroenterology, and the ENT Clinic.
Nevaeh has made close to 400 trips to SickKids - including open heart surgery at age ten.
She is a proud ambassador for SickKids.
Rosie was born in February 2018. The day after her birth, she started turning grey and was lethargic. She was taken by ambulance to the local hospital, and then sent by helicopter to SickKids.
Diagnosed with multiple severe heart defects, Rosie had to be placed on the heart transplant waiting list.
After four months, a heart became available for Rosie. She suffered two strokes during her treatment, which will mean she suffers life-long consequences. However, she is responsive and active, and making great progress.
Rosie finally went home after having spent 160 continuous nights at SickKids, which is almost two hours away from home.